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Two butterfly children drawing

Everyday life

Living with a special condition like EB, yet still trying to live a normal life with its highs and lows, successes and failures, wishes and dreams, strengths and weaknesses, has its difficulties.

Also life with EB will develop gradually into something like everyday life, and of course this has its own characteristics. So that everyday life can turn out well, you should be prepared for possible problems and pitfalls, but also use the opportunities that are given to you.

This chapter is intended to help make your living environment active and discover your options in which your life will be more manageable. If you look at this as a challenge and have courage to overcome these challenges, you will succeed as so many other families have done, in living with this disease.

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