Anesthesia means using an anesthetic agent for suppressing pain in examinations, treatment and operations.
In some subtypes of EB surgical procedures are often necessary. Also surgeries and treatments that are not related to the EB may be necessary. This sections provides advice of what to observe in case someone affected with EB needs anaesthesia.
Important points in a nutshell
- Anaesthesia means using an anaesthetic agent for supressing pain during examinations, treatment and operations. .
- All principle anaesthesia is possible for those affected by EB. However, certain precautions must be taken for various reasons ( including for example, the increased vulnerability of the skin and often mucous membranes, existing limited ability of opening the mouth, etc.).
- Gool planing, starting well before the already planned intervention is essential!
- What needs and specific practices are used for patients with EB, needs to be communicated to everyone involved (doctors, nurses).
- In an emergency, if these precautions require too much time - then lifesaving measures have priority!
- Despite all the caution and experience, blisters and sores cannot be completely avoided, especially in severe forms of EB
- Anaesthesia for generalized EBSpdf - 111 KB
- Anaesthesia for localized EBSpdf - 110 KB
- Anaesthesia for EBS with Muscular Dystrophy (other rare forms)pdf - 112 KB
- Anaesthesia for generalized dominant dystrophic EBpdf - 116 KB
- Anaesthesia for localized dominant dystrophic EBpdf - 110 KB
- Anaesthesia for generalized severe RDEB and intermediate RDEBpdf - 117 KB
- Anaesthesia for RDEB, otherpdf - 116 KB
- Anaesthesia for generalized intermediate JEBpdf - 114 KB
- Anaesthesia for localized JEBpdf - 110 KB
- Anaesthesia for generalized severe JEBpdf - 124 KB
- Anaesthesia for Kindler Syndromepdf - 115 KB