Dental problems can occur with different frequencies and different degrees of severity in many forms of EB.
In some (not many!) forms of EB tooth damage is hard to avoid, since genetic enamel defects exist. But even with forms of EB where there are no enamel defects, normal dental condition often leads to tooth decay, because oral hygiene can be difficult due to blister formation or difficulty in opening the mouth.
With appropriate care, a dental healthy diet, regular dental check-ups and professional oral hygiene, damage to the baby teeth as well as the permanent teeth due to caries in many cases is preventable. It is worthwhile in any case - despite all the other worries and problems caused by EB - to pay regular attention to your teeth and their care. When parents and children are well informed and from the beginning a good working relationship exists between the family, the supervising dentist and EB-specialists, the condition of the teeth can generally be positively influenced.
Important points in a nutshell
- Dental care starting with the first tooth is important in EB to avoid many subsequent problems.
- It is based on a regular teeth cleaning at home, at best twice daily with a soft toothbrush, with a small brush head and age-appropriate fluoride toothpaste.
- Find a good dentist as early possible, because professional cleaning and rapid intervention when problems arise is necessary.
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- Teeth EBS generalized severepdf - 123 KB
- Teeth EBS localizedpdf - 124 KB
- Teeth EBS other (rare) formspdf - 134 KB
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- Teeth RDEB generalized otherspdf - 139 KB
- Teeth RDEB generalized severepdf - 138 KB
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- Teeth JEB other (rare) formspdf - 144 KB
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