Blisters and sores are part of the lives of all people living with EB - but in highly varying degrees. The proper care for blisters and sores is therefore necessary for all concerned, as it is a part of everyday life that needs to be addressed as best as possible.
How to do this depends on several factors. The two most important are the EB-type and the age of the person concerned. In addition to these, there are other factors such as nutritional status, the general condition, the current condition of the skin, the availability of dressing materials, the possibility of home care and the home environment. The need for and the intensitiy of treatment changes from day to day, and there many different materials (dressings, ointments, aids) that can be used to adapt the treatment for daily life, work and social circumstances.
Important points in a nutshell
- The nature and cost of wound care depends on many factors:
- Type of EB
- By age
- The general perception
- On the current skin condition
- On the nutritional status
- The home environment
- On the availability of dressing materials
- On the amount of assistance with care
- It is important that these factors are taken into account, so that the wound care can be well planned and prepared for.
- General Information for Woundcare, all EB-typespdf - 129 KB
- Woundcare and dressing change for DEB and JEBpdf - 152 KB
- Woundcare and dressing change for EBS generalized severepdf - 157 KB
- Woundcare and dressing change for EBS localized, EBS generalized intermediate , EBS (rare) others and Kindlerpdf - 157 KB
- Hand disinfection, all EB-typespdf - 73 KB