Blisters and sores are part of the lives of all people living with EB - but in highly varying degrees. The proper care for blisters and sores is therefore necessary for all concerned, as it is a part of everyday life that needs to be addressed as best as possible.
How to do this depends on several factors. The two most important are the EB-type and the age of the person concerned. In addition to these, there are other factors such as nutritional status, the general condition, the current condition of the skin, the availability of dressing materials, the possibility of home care and the home environment. The need for and the intensitiy of treatment changes from day to day, and there many different materials (dressings, ointments, aids) that can be used to adapt the treatment for daily life, work and social circumstances.
Important points in a nutshell
- The nature and cost of wound care depends on many factors:
- Type of EB
- By age
- The general perception
- On the current skin condition
- On the nutritional status
- The home environment
- On the availability of dressing materials
- On the amount of assistance with care
- It is important that these factors are taken into account, so that the wound care can be well planned and prepared for.
- Preparation: A good preparation of the dressing-station with all the necessary materials and an available place for the disposal of the old dressing material shortens the actual dressing change process.
- Hand disinfection: Should always be carried out by all persons involved in dressing changes. Removal of the old dressings: Can be simplified by soaking them in the bathtub or with moistened towels
- Removal of the old dressings: Can be simplified by soaking them in the bathtub or with moistened towels
- Assessment of the wounds and making decisions: Open larger blisters, remove exudates and clean wounds, treat infected wounds
- Apply new dressings: Generally a mesh dressing, then compression dressing and lasting securement
- Picking up and cleaning the dressing-station
- General Information for Woundcare, all EB-typespdf - 129 KB
- Woundcare and dressing change for DEB and JEBpdf - 152 KB
- Woundcare and dressing change for EBS generalized severepdf - 157 KB
- Woundcare and dressing change for EBS localized, EBS generalized intermediate , EBS (rare) others and Kindlerpdf - 157 KB
- Hand disinfection, all EB-typespdf - 73 KB