• Donate now...

    Through your donation you can help to secure the operation of the EB House Austria and support research on the way to a cure for Epidermolysis Bullosa. The EB House Austria is financed completely by DEBRA Austria, the patient organisation for Butterfly Children.

    Donate here

  • ... or help individually.

    Here you can find different ways to help "Butterfly Children" - with organising events, etc. 

    See how you can help


Donation Account: IBAN AT02 2011 1800 8018 1100, BIC GIBAATWWXXX, DEBRA Austria, Am Heumarkt 27/1, 1030 Vienna

donate now

EB Handbook


This reference book is an online reference which gives you the option to filter out only the information relevant for your specific EB problems. All texts are printable and graphically conditioned.

Our “EB Handbook” is directed towards everyone that is directly affected by EB as well as their families. This information is intended for all those who have to deal with all the various challenges which are connected with EB. We are of course happy with all the other readers, who are interested and want to learn more about this disease.

This handbook does not replace medical assistance in any circumstances, its main purpose is to provide you with all the information you need, to get a better idea of this disease and all its various forms and consequences. It is intended to serve as a basis to help overcome all the various challenges which occur when living with EB.

We do not intend to claim that this handbook contains all the information about EB. But it is our sincere intention to keep on gaining experience and growing knowledge in the future. We will update the handbook as we go.

Hopefully, one day a real cure for EB will replace the need for our handbook.

Anja Diem, MD
Manager EB Outpatient Unit