• Donate now...

    Through your donation you can help to secure the operation of the EB House Austria and support research on the way to a cure for Epidermolysis Bullosa. The EB House Austria is financed completely by DEBRA Austria, the patient organisation for Butterfly Children.

    Donate here

  • ... or help individually.

    Here you can find different ways to help "Butterfly Children" - with organising events, etc. 

    See how you can help

     

Donation Account: IBAN AT02 2011 1800 8018 1100, BIC GIBAATWWXXX, DEBRA Austria, Am Heumarkt 27/1, 1030 Vienna

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Butterfly Children

Group picture of seome Butterfly Children

Especially fragile, but brave

We call people affected by this serious skin disease "butterfly children" since their skin is as fragile as the wings of a butterfly.

We use this metaphor to paint a positive picture of people with a serious fate: children and adults who tackle life with optimism despite many limitations but need our support and solidarity nonetheless.

After all, it is not only children who are affected by Epidermolysis bullosa (EB); "butterfly children" live with EB all their lives. In accordance with the European Union definition, EB is included in the list of rare diseases. Every year in Austria, a certain number of "butterfly children" are born with a severe form of EB.

Overall, there are about 500 people with EB in Austria; in Europe, their number is around 30,000.