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    Through your donation you can help to secure the operation of the EB House Austria and support research on the way to a cure for Epidermolysis Bullosa. The EB House Austria is financed completely by DEBRA Austria, the patient organisation for Butterfly Children.

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  • ... or help individually.

    Here you can find different ways to help "Butterfly Children" - with organising events, etc. 

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Donation Account: IBAN AT02 2011 1800 8018 1100, BIC GIBAATWWXXX, DEBRA Austria, Am Heumarkt 27/1, 1030 Vienna

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The Disease

Infographic about the different types of EB
Infographic created by FIENDISH.com (click to enlarge) Download png or pdf file on FIENDISH.com

Blisters, wounds, pain

Epidermolysis bullosa (EB) is a severe congenital skin disorder that currently cannot be cured.

EB makes the skin blister or tear with any action that creates friction. Persons with EB constantly suffer from wounds and pain.

Blisters, wounds and scars not only occur on the patients' skin, but also affect mucous membranes such as the moist lining of the mouth, eyes, oesophagus and gastro-intestinal system.

Other complications of EB include pain, itching, scarring, fusion of fingers and toes, tooth decay and tooth loss, nutritional and digestive problems and, in some cases, aggressive skin cancer. Living with EB is a tremendous challenge for patients and their families. Patients with severe forms of EB have a shorter life expectancy.

500 people are affected

EB is one of the so-called rare diseases and occurs with a probability of approx. 1:17,000. In Austria, there are around 500 people who live with EB; in Europe, the number is estimated to be around 30,000.

The public health system is not prepared for dealing with the special challenges presented by such a rare disease. For a long time, there was a lack of medical expertise, and even today, public funding is not (yet) available.

Medical treatment, research and social assistance for children with EB and their families would not be possible without the help of donations.