• Donate now...

    Through your donation you can help to secure the operation of the EB House Austria and support research on the way to a cure for Epidermolysis Bullosa. The EB House Austria is financed completely by DEBRA Austria, the patient organisation for Butterfly Children.

    Donate here

  • ... or help individually.

    Here you can find different ways to help "Butterfly Children" - with organising events, etc. 

    See how you can help

     

Donation Account: IBAN AT02 2011 1800 8018 1100, BIC GIBAATWWXXX, DEBRA Austria, Am Heumarkt 27/1, 1030 Vienna

donate now

The Mission Statement of the EB House Austria

The EB House Austria is the first, comprehensive specialist clinic ("Centre of Expertise") in the entire world for the diagnosis and treatment as well as research in the area of Epidermolysis bullosa (EB). In this way, the EB House Austria is:

  • a central point of information in which medical care (EB Outpatient Unit), research (EB Research Unit) as well as training and education (EB Academy) are closely interlinked under one roof.
  • an institution in which best practice approaches for the treatment and support of EB patients are developed and implemented and where the exchange between specialists in Austria and abroad is optimised.
  • a research institution, where state-of-the-art research findings - with clear objectives for alleviating and healing EB - are sought after, and where cooperation with the world´s best EB researchers takes place.
  • a platform as well as a hub for the networking and exchange of experiences as well as the training and education for EB patients, relatives, doctors, medical specialists and scientists, in other words: every single person interested in the healing and alleviation of EB.
  • an agency which fosters the close contact with similar centres as well as EB specialists in the EU and the rest of the world.
  • on the way to becoming an officially recognised centre of expertise on the national and international level (by the Ministry of Health, EU, etc.) - for the care of EB patients in addition to the research and development of healing and alleviating approaches.
  • a potential model of an integrated multi-disciplinary centre of expertise for a rare disease.