• Donate now...

    Through your donation you can help to secure the operation of the EB House Austria and support research on the way to a cure for Epidermolysis Bullosa. The EB House Austria is financed completely by DEBRA Austria, the patient organisation for Butterfly Children.

    Donate here

  • ... or help individually.

    Here you can find different ways to help "Butterfly Children" - with organising events, etc. 

    See how you can help

     

Donation Account: IBAN AT02 2011 1800 8018 1100, BIC GIBAATWWXXX, DEBRA Austria, Am Heumarkt 27/1, 1030 Vienna

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Academy

The Academy in the EB House Austria is responsible for the training and continuing education of all those persons who are living with EB (patients, medical staff, scientists) In addition, it provides networking for the national and international networking of doctors and researchers in the context of the project "EB-CLINET - Clinical Network of EB Centres and Experts". Fundraising and public relations also belong to the job description of the Academy team.

Tasks of the Academy at the EB House Austria

Fields of endeavour in the EB House Academy

1. Training and continuing education

Training and continuing education for clinics, researchers, patients, EB - CLINET partners as well as self-help groups through national and international training programmes (seminars, workshops, conferences, congresses).

2. Networking

  • Networking as a result of the EB-CLINET project:
    - Management of the more than 60 EB-CLINET partners world-wide
    - Coordination of the EB-CLINET sub-projects (Treatment guidelines with global validity, international EB registry, directory of all centres of expertise, laboratories and biobanks)
  • Updating the EB registry (national and international)
  • Cooperation with other networks for rare diseases: EURORNIS, Orphanet, DEBRA International, EB House, SALK Networks....

3. Fundraising and Public relations

  • Maintaining contacts to sponsors (lectures, house tours, participation in charity events)
  • Contact to the press, publications for specialists and non-professional readers, reporting, production of information material, organisation of events, content management of the websites www.eb-haus.org, www.eb-clinet.org.